As we mark World Alzheimer’s Day on September 21, the Lewy Body Society is calling for greater awareness of Lewy body dementia (LBD)—a form of dementia that many have never heard of but affects thousands of families across the UK. 

While Alzheimer’s disease is the most well-known form of dementia, LBD remains significantly under-recognised, leading to challenges in getting a proper diagnosis and support for those living with the disease and their carers.

Lewy body dementia is the second most common form of progressive dementia after Alzheimer’sin older people and the third overall, yet awareness of the disease remains low. 

Often, people are misdiagnosed with other conditions like Parkinson’s or Alzheimer’s due to overlapping symptoms, delaying essential care and treatment. 

Jacqueline Cannon, CEO of the Lewy Body Society, which is based in Wigan, Greater Manchester, stresses the critical need for timely and accurate diagnosis to improve the quality of life for both patients and their families.

She said: “Lewy body dementia is a complex and often misunderstood condition. Many families struggle for years to get the right diagnosis, meaning their loved ones miss out on the vital support they need. It’s crucial that healthcare professionals are equipped with the knowledge and resources to identify LBD early, and that those affected receive the compassionate, quality care they deserve. We need to ensure that people living with LBD, as well as their carers, are not left to cope alone.”

Lewy body dementia presents a unique set of challenges, including pronounced fluctuations in cognitive abilities, hallucinations, and motor symptoms. These require tailored care and support, but many families are unaware of where to turn for help. 

This World Alzheimer’s Day, the Lewy Body Society is urging individuals and healthcare professionals alike to learn more about this disease and to prioritise comprehensive care and support for those impacted.

If you or a loved one are struggling with symptoms of Lewy body dementia or need support, get in touch with the Lewy Body Society who can provide guidance, information, and resources. Visit LewyBody Society or call  01942914000 for advice and support.