My father Vivyan Grant,British, lived in Porto Portugal but passed away last year close to his 89th birthday. I saw him only on regular visits and acted as temporary carer on those visits so saw the gradual development and effects of this condition on the end of his life. In memory of a loyal,caring and loving father , the most honest man I know who suffered from unexplained falls in his 80’s which turned out to be the beginning of this debilitating disease. I wish all other suffering from it patience and understanding and hope that organisations like this can provide the information that will help with diagnoses and care.. I think he would appreciate that thought.