We’ve given our popular publication A guide to Lewy body dementia an update and refresh. This booklet provides an introduction to the disease including what you might expect when seeking a diagnosis and what treatments are available. It also offers advice about planning ahead and looking after yourself as a carer. Many people have told […]
The Lewy Body Society is delighted to announce the appointment of Rachel Thompson as the first ever Consultant Admiral Nurse for Lewy body dementia. The new role represents the next stage in the charity’s partnership with Dementia UK, which runs the Admiral Nurse service and helpline. Rachel will continue to be hosted by Dementia UK, […]
When we were contacted back in March and asked if we wanted to be the charity partner for this year’s Showtime Challenge 48-hour Musicals performance of Singin in the Rain, we naturally jumped at the chance. 48-Hour Musicals is an initiative that has been going for 15 years, established by producer Ian Haig. The premise […]
Access investigational medicines for Lewy body dementia on a clinical trial Re:Cognition Health, a world-leading centre for late phase international clinical trials for Alzheimer’s and dementia research, is currently enrolling volunteers with a Lewy body dementia diagnosis to take part in a trial to help test potential new treatments. Clinical trials are imperative, helping us […]
Margaret Taylor and five of her friends recently completed the Great Glen Way, a tough 73 mile walk across the Scottish Highlands from Fort William to Inverness. This is the inspiring story – in Margaret’s own words – of the motivation behind their challenge, the laughs along the way, and the fantastic support they received. […]
The Lewy Body Society, a charity dedicated to tackling the second most common form of dementia, has announced the latest recipients of its grants programme. The charity is awarding three grants totalling £314,000 for projects at the University of Cambridge, Newcastle University and Imperial College London. These grants take the total research funding issued by the charity […]
On 14th November we held a meeting in the Houses of Parliament to discuss Lewy body dementia with MPs and Peers. The team from Join Dementia Research also came along to discuss their work on recruiting volunteers for research studies and drug trials. Among those who attended were Caroline Dinenage MP, Minister for Care at […]
The Founder of The Lewy Body Society and Chair of The Trustees recently gave an interview to Elder about her mission to raise awareness of Lewy body dementia. Read the interview here: https://www.elder.org/feature/lewy-body-dementia-interview-ashley-bayston-lewy-body-society/
Dementia with Lewy bodies has a unique genetic profile, distinct from those of Alzheimer’s disease or Parkinson’s disease, according to the first large-scale genetic study of this common type of dementia. The genome-wide association study, conducted by a UCL-led collaboration of 65 academics in 11 countries and funded by Alzheimer’s Society and the Lewy Body […]
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