We were recently contacted by Lex Veldhuis, a professional poker player based in the Netherlands. Lex had recently lost his father to Lewy body dementia and wanted to support a charity that raised awareness and funded research into the disease. Along with PokerStars, he organised a charity run on his online stream and gathered donations […]
Since the summer we have run more than half a dozen online events via Zoom and the level of engagement from our supporters has been fantastic. We’ve held events focusing on the needs of carers, on the Admiral Nurse Dementia Helpline, on research, and on how to set up power of attorney. Some of the […]
Do you want to know what it feels like to live with Lewy body dementia? Do you understand the process for getting a diagnosis and where to look for support for yourself and family members? Have you thought about the future and how to keep living well for as long as possible? Get answers to […]
By Shivani Patel and Jiabin Tang To download this article as a pdf please click here. Introduction Recently, all our lives have been turned upside-down by the Coronavirus (COVID-19) pandemic. In this article we will describe the impact of the pandemic and the resultant ‘lockdown’ on people living with Lewy body dementia, and how the […]
This poem was sent to us by one of our supporters Sarah Habermass. It is about her father who sadly passed away in 2017 with Lewy body dementia. He was Welsh, a keen gardener and an ex-teacher, and through the poem Sarah has tried to convey how she imagined his world to be, while living […]
As part of our awareness week Dotty Days, which is taking place from 1-7 June, we are asking supporters to hold a coffee morning with a difference! With ongoing restrictions due to the COVID-19 crisis, a traditional gathering in a hall, café or workplace canteen isn’t possible. But you can still connect with family and […]
1-7 June 2020 This year’s Dotty Days will be a little different. The cake sales and garden open days will have to wait, but you can still mark the week and help us raise awareness in the following ways: * Wear dots – an item you own or you can purchase a badge or wristband […]
2019/20 Grant awarded to Professor John-Paul Taylor, Deputy Dementia Theme lead for the NIHR Newcastle Biomedical Research Centre, Translational and Clinical Research Institute, Newcastle University Aim of the study Using advanced imaging on a PET-MR scanner, this study will examine how the visual part of the brain processes signals, so that we can better understand […]
Chris Leek , has joined Ken Clasper, Conor McGinn MP and Les Magee to become our fourth Ambassador. We are delighted that he has agreed to take on the role. Chris has first-hand experience of Lewy body dementia as his father is living with Lewy body dementia. Chris Leek completed the Enduroman Arch 2 Arc […]
We would like thank Richard Howard for organising a wonderful black tie ball and raising over £12,500 for The Lewy Body Society. On Saturday 23rd November over 400 people enjoyed a glittering evening at the Forum in Stevenage. A lucky few guests also had a dance lesson with Strictly Come Dancing star Robin Windsor, and […]
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