The next Virgin Money London Marathon will take place on Sunday 3rd October 2021. This year we are entitled to a single entry and we would like to invite applications from anyone interested in taking up that place and supporting Lewy body dementia research. We ask that you raise a minimum of £1000 and we […]
The critically acclaimed documentary ROBIN’s WISH was released in the UK on 4th January 2021. You can watch the trailer on YouTube here. There has been lots of media coverage around the film which has helped to raise awareness of LBD, including this article on Sky News. This interview with Susan Schneider Williams gives great insight into her mission to […]
We were recently contacted by Lex Veldhuis, a professional poker player based in the Netherlands. Lex had recently lost his father to Lewy body dementia and wanted to support a charity that raised awareness and funded research into the disease. Along with PokerStars, he organised a charity run on his online stream and gathered donations […]
Since the summer we have run more than half a dozen online events via Zoom and the level of engagement from our supporters has been fantastic. We’ve held events focusing on the needs of carers, on the Admiral Nurse Dementia Helpline, on research, and on how to set up power of attorney. Some of the […]
Do you want to know what it feels like to live with Lewy body dementia? Do you understand the process for getting a diagnosis and where to look for support for yourself and family members? Have you thought about the future and how to keep living well for as long as possible? Get answers to […]
By Shivani Patel and Jiabin Tang To download this article as a pdf please click here. Introduction Recently, all our lives have been turned upside-down by the Coronavirus (COVID-19) pandemic. In this article we will describe the impact of the pandemic and the resultant ‘lockdown’ on people living with Lewy body dementia, and how the […]
This poem was sent to us by one of our supporters Sarah Habermass. It is about her father who sadly passed away in 2017 with Lewy body dementia. He was Welsh, a keen gardener and an ex-teacher, and through the poem Sarah has tried to convey how she imagined his world to be, while living […]
As part of our awareness week Dotty Days, which is taking place from 1-7 June, we are asking supporters to hold a coffee morning with a difference! With ongoing restrictions due to the COVID-19 crisis, a traditional gathering in a hall, café or workplace canteen isn’t possible. But you can still connect with family and […]
1-7 June 2020 This year’s Dotty Days will be a little different. The cake sales and garden open days will have to wait, but you can still mark the week and help us raise awareness in the following ways: * Wear dots – an item you own or you can purchase a badge or wristband […]
2019/20 Grant awarded to Professor John-Paul Taylor, Deputy Dementia Theme lead for the NIHR Newcastle Biomedical Research Centre, Translational and Clinical Research Institute, Newcastle University Aim of the study Using advanced imaging on a PET-MR scanner, this study will examine how the visual part of the brain processes signals, so that we can better understand […]
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