On 14th October 20202 The Lewy Body Society will unveil a 1600-metre scarf around the entire circumference of the Royal Albert Hall in London – five times – to show support for those living with Lewy body dementia. More than 100 volunteers will be attending to help the dementia charity wrap the mile long scarf […]
We are deeply saddened to hear the news of the death of Her Majesty Queen Elizabeth II. Our thoughts are with the Royal Family and all those around the world who will mourn her loss. Following this news, and after discussions with the Royal Albert Hall, we have decided to postpone the A Scarf for […]
We are delighted to announce that along with international partners we have launched an umbrella organisation called Lewy Body International. The aim of the group is to promote awareness and knowledge of Lewy body dementia globally through a network of dedicated LBD organisations. When The Lewy Body Society was established in 2006 we were the […]
After the success of the first ever Lewy Body MasterClass last November, we are delighted to be supporting the Neurology Academy to run another session, which will take place in Sheffield on 16/17 November 2022. You can find out more and book your place here. We are running a competition with the Neurology Academy to […]
PLEASE NOTE THIS EVENT HAS BEEN POSTPONED UNTIL 14TH OCTOBER Our awareness raising event ‘A Scarf for Lewy’ is now getting closer and we are delighted with the response and the level of support so far. In case you’ve missed it, we’re going to be wrapping a huge scarf around the Royal Albert Hall on […]
In a personal and moving blog, Nick Aldworth has written about losing his dad Richard to Lewy body dementia two years ago and the impact it had on him, his mum and his family. I faced a bit of a personal battle during Lewy Body Dementia Awareness Week. We lost my Dad – Richard Aldworth […]
Thank you to Heather Ritchie for sharing her story as part of the Carers Week report. Read the report and recommendations here. Carers Week charities are calling for an urgent 12-month plan of targeted support for unpaid carers, as many struggle with the ongoing impact, as well as the legacy, of the pandemic, together with […]
Carers Week is an annual campaign to raise awareness of caring, highlight the challenges unpaid carers face and recognise the contribution they make to families and communities throughout the UK. It also helps people who don’t think of themselves as having caring responsibilities to identify as carers and access much-needed support. The campaign is brought […]
Following the fantastic support from Dame Prue Leith, additional celebrity backing for our campaign has come from actress Paula Wilcox and presenter Anne Robinson. Both have kindly knitted a scarf to help us raise awareness of Lewy body dementia. The scarves will be joined with hundreds of others and wrapped around the Royal Albert Hall […]
The Lewy Body Society and Dementia UK have today published a new leaflet to support people living with the disease, their families and carers, to manage a common and at times distressing symptom. People with Lewy body dementia are more likely to experience symptoms of delusion and misidentification (ie not recognising someone or something) than […]
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