Our popular Christmas cards are now available from our online shop. By purchasing these cards you will be supporting our efforts to raise awareness of Lewy body dementia, and fund research to help diagnose and treat the disease. Featuring original designs by Design 10 Ltd, they are sure to be as popular as in previous […]
In Lewy body dementia, problems such as hallucinations and delusions often arise. In some cases, these may present as ‘delusions of misidentification’, of which Capgras syndrome is one type. In Capgras syndrome, a person believes that a friend, spouse, parent, or other close family member has been replaced by an identical-looking impostor. This can be […]
Earlier this year we were contacted by a member of the Team RLS at RAF Akrotiri in Cyprus. They set themselves the challenge of running, walking and cycling the distance from RAF Brize Norton in Oxfordshire to RAF Akrotiri which is a total of 2,079 miles! One of the team members has a close relative […]
On Saturday 25th June, a team from Palo Alto Networks, a leading global cyber security company, completed their Hikers versus Bikers charity challenge, supported by their sponsor, Exclusive Networks. Nineteen walkers completed the Yorkshire Three Peaks, a 26 mile walk in the Yorkshire Dales over the summits of Pen-y-ghent, Whernside and Ingleborough. The “hares” team […]
We have received the following report from the University of Cambridge, which summarises the progress made following the award of a Lewy Body Society grant in 2015. There are some very positive outcomes, such as an improved understanding of imaging biomarkers in people living with Lewy body dementia, the recruitment of people living with LBD […]
This information about research methodology was shared at the International Mental Health Nursing Research Conference by Allison Bentley, Lead Research Nurse for Lewy body dementia at Cambridgeshire and Peterborough NHS Foundation Trust. This is part of a study funded by The Lewy Body Society focusing on the narrative stories of people living with Lewy body […]
Study Title: The feasibility and acceptability of a psychosocial intervention to support people with dementia with Lewy bodies and family care partners We have received an update from Newcastle University about a study that was supported by The Lewy Body Society, which we wanted to share with our supporters. Background Clinicians and people with lived […]
We were delighted to work with a team of academics – Rimona Weil (UCL), Claire O’Callaghan (The University of Sydney) & John-Paul Taylor (Newcastle University) – to host the Lewy Body UK 2021 Scientific Conference on 15th June. With 15 speakers in total, some from as far away as Australia and the USA, it was […]
Hallucinations and changes in visual perception can be among the most challenging symptoms of Lewy body dementia, both for the person living with the disease and their family/caregivers. That’s why we’ve produced a new resource with information and tips about how to manage hallucinations, based on feedback from people living with LBD and their carers. […]
As Lewy Body Dementia Awareness Week 2021 gets underway, we are delighted to publish a special essay by Jane Sigaloff. Jane is a published author and in this powerful piece she describes the range of emotions she experienced during her father’s Lewy body dementia journey. Peter was diagnosed with Lewy body dementia in 2015 and […]
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