Updated guide to Lewy body dementia now available

We’ve given our popular publication A guide to Lewy body dementia an update and refresh.  This booklet provides an introduction to the disease including what you might expect when seeking a diagnosis and what treatments are available. It also offers advice about planning ahead and looking after yourself as a carer.  Many people have told […]

First ever Consultant Admiral Nurse for Lewy body dementia

The Lewy Body Society is delighted to announce the appointment of Rachel Thompson as the first ever Consultant Admiral Nurse for Lewy body dementia. The new role represents the next stage in the charity’s partnership with Dementia UK, which runs the Admiral Nurse service and helpline.  Rachel will continue to be hosted by Dementia UK, […]

Charity ball in Wigan raises over £1800 for dementia research

On Saturday 9th November businesses from across Wigan turned out in force to support the Lewy Body Society at a gala ball organised by Diane Wilde from Rutter Green Estate and Letting Agents. The event, kindly hosted for free by Gathurst Golf Club in Shevington, featured an auction, entertainment from singer Chloe Erika Pownell and […]

New world record for Chris in London to Paris endurance challenge

We are thrilled to share the news that Chris Leek completed the Enduroman Arch 2 Arc Triathlon last weekend and achieved a world record in the non-wetsuit category by finishing in just 69 hours.  In this time he ran 87 miles from Marble Arch in London to Dover, swam 21 miles across the English Channel, […]

Chris Leek’s £1m ‘Arch to Arc’ challenge

Every single one of our supporters who completes a physical challenge to raise money for Lewy body dementia research – whether it’s a 5k race, a mountain walk or a marathon – has our gratitude and admiration.  We couldn’t have funded £1 million in research to improve the diagnosis and treatment of the disease without […]

#7factsaboutLewy

This post pulls together into a thread a series of tweets and posts we shared on Twitter and Facebook during Dotty Days, our awareness week, using the hashtag #7factsaboutLewy. We hope they’ve helped to inform people about Lewy body dementia, the Lewy Body Society and our work. Day 1 of #7factsaboutLewy It is thought that […]

Dotty Days 2019 – Lewy body dementia awareness week

Dotty Days 2019 runs from 1-8 June this year and we wanted to let you know how you can get involved.   You can buy your dotty pin badge, wristbands or ribbons on our online shop here or message us for a free fundraising pack. We really hope this year Dotty Days will be bigger […]

New clinical trial seeks participants

Scientific Research Banner

One of the Lewy Body Society’s main aims is to support research into Lewy body dementia, to help improve diagnosis and treatment of the disease in future. A new clinical trial started in 2018 at a number of different hospitals and research centres across the UK. If you or someone you know would like to […]

Invitation to research: Dementia with Lewy Bodies

We would like to invite you to take part in a new research study hosted by a research group based at Cardiff University. Since 2004 we have been interviewing people and collecting blood samples to try to understand more about how certain genes affect the likelihood of developing dementia. So far over 5000 people have […]