Margaret Taylor and five of her friends recently completed the Great Glen Way, a tough 73 mile walk across the Scottish Highlands from Fort William to Inverness. This is the inspiring story – in Margaret’s own words – of the motivation behind their challenge, the laughs along the way, and the fantastic support they received. […]
Dotty Days 2019 runs from 1-8 June this year and we wanted to let you know how you can get involved. You can buy your dotty pin badge, wristbands or ribbons on our online shop here or message us for a free fundraising pack. We really hope this year Dotty Days will be bigger […]
So many of our supporters choose to raise money for the Lewy Body Society because of their personal experience of the disease. This is the case for Kara Coles, who ran the London Marathon for the first time this year in a fantastic time of 5 hours and 29 minutes. Kara’s dad was diagnosed with […]
Here at the Lewy Body Society, we get a lot of calls from and other bodies who are conducting research into dementia. As a charity, funding and supporting research is our main priority, as we know that dementia research is not as advanced as for other common health conditions. It would be wonderful to eventually […]
The National Institute for Health and Care Excellence (NICE) is reviewing the quality standards it will ask the NHS to focus on in future. These are areas that NHS services will be measured against to see how well they are performing. We recently asked for your feedback on the draft standards. Based on the responses […]
We would like to thank the Slowey family, who for the second year running have undertaken a huge fundraising effort on behalf of the Lewy Body Society. They have been raising money in memory of their mum and gran, who passed away in March 2017 aged 80, having been diagnosed with Lewy body dementia four […]
The Lewy Body Society does not run any local support groups, but if you would like to be involved in supporting people with dementia with Lewy bodies (DLB) or Parkinson’s dementia (PDD) in your area, please get in touch. For information on dementia services in your area, try Dementia web which is gathering together details […]
Lewy Body Society played an active role in the Dementia Action Alliance (DAA) meeting on Wednesday 20 March. Speakers included Shadow Health Secretary, Andy Burnham MP and Dr Martin McShane of the NHS Commissioning Board (see ‘Domain 2: Improving Outcomes for People with Long Term Conditions’). If you would like to find out more about […]
The Dementia Services Development Centre at the University of Stirling is trying to make things better for people with dementia and to support carers through its research and teaching for health and social care staff. They are inviting carers to join their Carers Panelto answer questions, from time to time, on what makes a difference […]
The New Year sees the launch of two new online dementia information services for the South of England and Warwickshire. The Our Health website for the South of England was originally developed in the South West, initially providing information on local stroke and dementia services. The website received the Prime Minister’s backing in March 2012, […]
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