What they don’t tell you about dementia
This is a brave and uncompromising piece, from The Guardian, on the impact that Lewy Body Dementia has had on Dawn Vance (the author) and her mother (the patient). Article Link
Category: Carers
Local to you
The Lewy Body Society does not run any local support groups, but if you would like to be involved in supporting people with dementia with Lewy bodies (DLB) or Parkinson’s dementia (PDD) in your area, please get in touch. For information on dementia services in your area, try Dementia web which is gathering together details […]
New Blog: A week with Mr Lewy Body
Karen Wilson whose Dad has Lewy Body Dementia decided to write a blog called ‘A week with Mr Lewy Body’. Her aim is to bring awareness to all types of dementia, and hopefully raise some money. The blog has links to both Alzheimers and the Lewy Body Society, for people to donate. It is published […]
Carers Guide: Living with Lewys
Although this book has be around for several years and we list it in our Books Section. We thought it worth highlighting again, especially for new carers. If anyone has read this and can contribute a review. Please mail via our Contact Form.
9 – 15 June: Carers Week
Carers Week is a UK-wide annual awareness campaign taking place from Monday 9 to Sunday 15 June 2014. Its aim is to improve the lives of carers and the people they care for. It does this by raising awareness of carers at a national, regional and local level. Hundreds of organisations and individuals join in […]
New tool to find dementia care in local area
[Source: Royal College of GPs, 22/05/14] The Royal College of General Practitioners (RCGP) has launched an online tool called the Dementia Roadmapto help people with dementia access care in their local area. Aimed at doctors and providers of community care, the Dementia Roadmap is a comprehensive ‘one stop shop’ designed to reflect a patient’s needs […]
Care UK – Listen, Talk, Connect
Care UK has produced a ‘Listen, Talk, Connect’ guide to help carers of loved ones with dementia. Listen, talk, connect has been put together by colleagues and those with personal experience of caring for loved ones, to assist relatives, friends and carers to continue having meaningful conversations with anyone living with dementia. Click here to […]
LBS publish two new leaflets
The Lewy Body Society has produced two new information leaflets to help frontline healthcare staff and the public recognise and respond to the symptoms of Lewy body dementia, the second most common progressive dementia, which affects over 130,000 people in the UK. The leaflets are entitled: ‘Are you worried about dementia?’ and ‘Referral for a […]
Carers’ Call to Action
At least 670,000 people in England have dementia and this number is set to double in the next 30 years. It is estimated that at least 550,000 people act as primary carers – this by no means reflects the number of children, extended family and friends whose lives are also affected. Caring for a loved […]
Living with Lewy body dementia
Written in 2012 by physiotherapist Judy Towne Jennings, this comprehensive guide benefits from professional and personal experience of Dementia with Lewy Bodies. Judy writes from personal experience of caring for her husband Dean and her many years of treating movement disorders. If you would be interested in reviewing this brave and unflinching account of the […]
