A Scarf for Lewy

On 22nd September 2022 we are holding an event with a difference… We are going to wrap a huge scarf around the entire circumference of the Royal Albert Hall in London, a massive 244m.  All to raise awareness of Lewy body dementia, the second most common type of dementia in older people. Lewy body dementia […]

Three-legged runners raise over £15,000 for Lewy body dementia research

A huge THANK YOU to the amazing Vicky and her friend Alison who completed the Exeter half marathon on three legs, dressed as Tweedle Dee & Tweedle Dum. Through this amazing feat they raised more than £15,500 for The Lewy Body Society. Vicky has chosen to support The Lewy Body Society as her husband Peter was […]

Hallucinations – new leaflet and webinar on 5th July

Hallucinations and changes in visual perception can be among the most challenging symptoms of Lewy body dementia, both for the person living with the disease and their family/caregivers. That’s why we’ve produced a new resource with information and tips about how to manage hallucinations, based on feedback from people living with LBD and their carers. […]

Dotty Days coffee morning – celebrating 15 years of the Lewy Body Society

9th June 2021, 11am.  Via Zoom Dotty Days, otherwise known as Lewy body awareness week, takes place from 6-13th June 2021. This year is extra special as it is our 15th birthday as a charity. We remain the only UK-based charity focused exclusively on Lewy body dementia. Join us for a virtual get together during […]

Dementia Action Week – sign the petition to cure the care system

Dementia Action Week takes place from 17-23 May 2021 and we are supporting Alzheimer’s Society and other dementia charities in calling for governments in th UK to fix the broken care system. This powerful film shows how without support, dementia can claim more than one life.  It is a message we wholeheartedly agree with, and […]

Exploring the effects of COVID-19 on people with dementia

As a research charity we are very keen to support studies that help advance understanding of the lives of people with Lewy body dementia, their families and carers, in addition to funding research through our grants programme. Throughout the Covid-19 pandemic we have been supporting a project led by Dr Clarissa Giebel, from the University […]

Online events now open for booking – May 2021

We are pleased to announce a further round of online events that are now available for booking. If you have any problems booking or have suggestions for future events, please send us an email. Tuesday 11th May 11am – Introduction to AMRC Open Research AMRC Open Research is a platform for rapid author-led publication & […]

Lewy Body UK conference – 15th June 2021

We are delighted to be working with our partners in the academic community to host a scientific conference focusing on all the latest Lewy body dementia research, and marking our 15th year as a charity. The conference is open to everone and is free to attend. However for people living with Lewy body dementia, their […]

Forthcoming online events – April 2021

We are pleased to announce a further round of online events that are now available for booking. If you have any problems booking or have suggestions for future events, please send us an email. Monday 12th April 11am – A talk with Karen Meenan, Global Brain Health Institute & Lewy Body Ireland Find out about […]

Webinar: What is Lewy body dementia really like?

Do you want to know what it feels like to live with Lewy body dementia? Do you understand the process for getting a diagnosis and where to look for support for yourself and family members? Have you thought about the future and how to keep living well for as long as possible?  Get answers to […]