New email newsletter – sign up now!
The Lewy Body Society is starting a new email newsletter and we would like to invite you to sign up here or using the simple form at the bottom right hand corner of this page. We will be sending regular updates (not too often, we promise) so that our community of supporters can keep up […]
Let’s Chat: online events programme launched
Our first two online events will take place this month, via Zoom, as we seek to bring together our community and support people affected by Lewy body dementia. Meet the Chief Executive & Introduction to the Lewy Body Society Tuesday 21st July, 11am UK time This event is a chance for you to meet our […]
Letter to Health Secretary – impact of COVID-19 on people living with Lewy body dementia
The current coronavirus crisis is extremely worrying for people living with Lewy body dementia, their families and carers. The team at the Lewy Body Society is heartbroken at the loss of so many of our fellow citizens, and humbled by the selfless efforts of those working in our health and care systems. For people with […]
Dotty Days 2019 – Lewy body dementia awareness week
Dotty Days 2019 runs from 1-8 June this year and we wanted to let you know how you can get involved. You can buy your dotty pin badge, wristbands or ribbons on our online shop here or message us for a free fundraising pack. We really hope this year Dotty Days will be bigger […]
Review of NHS quality standards for dementia care
The National Institute for Health and Care Excellence (NICE) is reviewing the quality standards it will ask the NHS to focus on in future. These are areas that NHS services will be measured against to see how well they are performing. We recently asked for your feedback on the draft standards. Based on the responses […]
MPs show their support for Lewy body dementia
On 14th November we held a meeting in the Houses of Parliament to discuss Lewy body dementia with MPs and Peers. The team from Join Dementia Research also came along to discuss their work on recruiting volunteers for research studies and drug trials. Among those who attended were Caroline Dinenage MP, Minister for Care at […]
Improving understanding of Dementia with Lewy bodies – Lewy Body Society
The society has funded a short film to promote awareness of Lewy body dementia. The film was produced by ITN Productions on behalf of the NHS alliance and was launched at their summit on the 6th December in London. The society was represented at the event by our President Prof Ian McKeith who features in […]
Alzheimer Scotland launches Let’s Talk about Dementia campaign
STARTING in February 2015, Alzheimer Scotland – Action on Dementia is launching a Let’s Talk about Dementia campaign. The campaign aims to open up more discussion on the subject of dementia and to raise awareness of the importance of early diagnosis. The article is entitled: ‘Media Release: Alzheimer Scotland launches Let’s Talk about Dementia campaign”allmediascotland.com […]
Local to you
The Lewy Body Society does not run any local support groups, but if you would like to be involved in supporting people with dementia with Lewy bodies (DLB) or Parkinson’s dementia (PDD) in your area, please get in touch. For information on dementia services in your area, try Dementia web which is gathering together details […]
Petition for more Admiral Nurses
The Lewy Body is asking all its friends to sign this petition to campaign for more Admiral Nurses. “Admiral Nurses are specialist dementia nurses. Admiral Nurses work with family carers and people with dementia, in the community and other settings. Working collaboratively with other professionals, Admiral Nurses seek to improve the quality of life for […]