Calling for early diagnosis and quality support for LBD on World Alzheimer’s Day
As we mark World Alzheimer’s Day on September 21, the Lewy Body Society is calling for greater awareness of Lewy body dementia (LBD)—a form of dementia that many have never heard of but affects thousands of families across the UK. While Alzheimer’s disease is the most well-known form of dementia, LBD remains significantly under-recognised, leading […]
A Scarf For Lewy 2024 – Manchester
On 17th October 2024 we are holding an event with a difference… We are going to have an event at Central Hall in Central Buildings,Oldham Street Manchester, M1 1JQ Register to attend the event: https://www.trybooking.com/uk/CZTD All to raise awareness of Lewy body dementia, the second most common type of dementia in older people. Lewy body dementia […]
World Lewy Body Day
Together with other Lewy body organisations on the first World Lewy Body Day (Sunday, January 28), the Lewy Body Society is shining a light on the most common disease you have never heard of. We will be holding events in Westminster and Newcastle and posting on our social media channels.
Podcasts
Until the death of Robin Williams, not many people had heard of #LewyBody Dementia. To raise awareness of the condition, ‘Living with Lewy’ is a two-episode podcast with The Lewy Body Society with support from The National Lottery Community Fund. You can listen now on out website or on the ITN Business Hub: https://business.itn.co.uk/podcasts/living-with-lewy/…
A Scarf For Lewy Belfast
A Scarf For Lewy Belfast On 17th October we held our long-awaited awareness-raising event in Belfast, which was the second time we have wrapped ‘A Scarf for Lewy’ around a major landmark building. The mile-long scarf which was lovingly knitted by volunteers last year and wrapped around the Royal Albert Hall in London was transported across the […]
Charity is calling for more awareness of forgotten form of dementia this World Alzheimer’s Day
A charity is calling for more awareness of ‘forgotten type of dementia’ to improve diagnosis, care, support, treatment and research this World Alzheimer’s Day (Sept 21). Wigan based Lewy Body Society is the only UK charity dedicated to supporting people living with this form of dementia – known as “the most common type of dementia you have […]
Tender for new website
We are looking for a company to work with to design and develop a new website. Our current website (www.lewybody.org) was created in 2015 and we believe a new and improved website will help us reach more people affected by Lewy body dementia, and more professionals and researchers, as well as helping them engage more […]
A Scarf for Lewy – new date confirmed
We are pleased to confirm the new date for A Scarf for Lewy, which was postponed due to the death of Her Majesty Queen Elizabeth II. The event will now take place on Friday 14th October 2022, at the Royal Albert Hall. We will be wrapping a giant scarf FIVE TIMES around this iconic building […]
Raising awareness is difficult, but it must be done – a blog by Nick Aldworth
In a personal and moving blog, Nick Aldworth has written about losing his dad Richard to Lewy body dementia two years ago and the impact it had on him, his mum and his family. I faced a bit of a personal battle during Lewy Body Dementia Awareness Week. We lost my Dad – Richard Aldworth […]
Case study – Kim’s story
Thank you to Kim Robinson and her family for sharing their experience of caring during the Covid-19 pandemic. As part of Carers Week, Kim attended an event at the Houses of Parliment and spoke to MPs and Peers about her caring role and Lewy body dementia. I care for my dad who was diagnosed with […]