The Lewy Body Society does not run any local support groups, but if you would like to be involved in supporting people with dementia with Lewy bodies (DLB) or Parkinson’s dementia (PDD) in your area, please get in touch.

For information on dementia services in your area, try Dementia web which is gathering together details of local services county by county. There is a website for dementia care in the South of England called Our Health.

For local support groups, you may find Alzheimer’s Society or Parkinson’s UK helpful. Carers Trust provide a database of local carer services.

Here are some opportunities to shape local services to provide better support for people with Lewy body dementias. If you do take part in any of these activities, or have suggestions of others we could list, please let us know through our contact form or emailing our Partnerships Officer. We’d love to hear about what’s happening in your area.

UK-wide
East of England
North West England
South Central England
South East England
South West England
Yorkshire and Humber
Scotland

UK-wide

Dementia Action Alliance
Dementia Engagement and Empowerment Project (DEEP)
Dementia Friendly Communities
Dementia Friends

East of England

Norfolk and Suffolk, ongoing: Norfolk and Suffolk Dementia Alliance

North West England

Greater Manchester – Salford, ongoing: Open Doors Support Network
Greater Manchester – Stockport, ongoing: EDUCATE (Early Dementia Users Co-operative Aiming To Educate
Greater Manchester – Trafford, ongoing: Dementia Advice and Peer Support Service

South Central England

Berkshire: West Berkshire Empowerment Group

South East England

West Sussex – Bognor Regis: The HOPE Group
West Sussex – Crawley, ongoing: Dementia Friendly Crawley

South West England

Cornwall, Until 22 February 2013: Public consultation on new model of dementia care
Devon – Plymouth, ongoing: Plymouth Dementia Action Alliance
Devon – Torbay: Torbay Dementia Action Alliance
Somerset – Bath, 21 February: Public meeting to make plans for ‘Dementia Friendly Bath’

Yorkshire and Humber

South Yorkshire – Doncaster, ongoing: Doncaster Dementia Forum
West Yorkshire – Leeds, 22 February: Yorkshire and Humber Dementia Action Alliance meeting

Scotland

Scotland-wide: Scottish Dementia Working Group
Grampian – Aberdeen, Aberdeenshire and Moray: Positive Dementia Group
Grampian – Banchory: Forget-me-Not Club