The Lewy Body Society , established in June 2006 in the UK, is the only charity in Europe exclusively concerned with Dementia with Lewy bodies. The charity's mission is to raise awareness of DLB for the general public and educate those in the medical profession and decision making positions about all aspects of the disease and to support research into the disease.
The Society is currently funding a PhD student who is doing research into the molecular genetics and functional genomics of DLB. It has also recently produced a series of vodcasts and a DVD about DLB.
The Society's address is:
The Lewy Body Society,
Hudson House
8 Albany St
Edinburgh
EH1 3QB
UK
Tel:+44 131 473 2385
Click here to view our brochure.
Patron
Miss June Brown MBE
President
Ian McKeith MD, FRCPsych F Med Sci
Chair
Ashley Bayston JP, BA, LLB
CEO
Jacqueline Cannon
Ambassadors
Peter Ashley
Ken Clasper
Trustees
Ashley Bayston JP, BA, LLB
Jacqueline Cannon
Steve Ford, Chief Executive, Parkinson's UK
Shelley Rayner McGarry
James McGarry BSc (Web and IT support)
Barbara Stephens BSc, Chief Executive, Dementia UK
Specialist Advisory Committee
The Specialist Advisory Committee (SAC) is a multi-disciplinary team of health and social care professionals who advise LBS on its workplan, adding credibility to the charity and providing expert input on specific pieces of work (e.g. content of information pack). Current membership is:
Prof. David Burn – Director, Institute for Ageing and Health and Professor of Movement Disorder Neurology, Newcastle University
Prof. Alistair Burns – National Clinical Director for Dementia and Deputy Dean, Institute of Brain, Behaviour and Mental Health, University of Manchester
Prof. Peter Connelly – Consultant Old Age Psychiatrist, Murray Royal Hospital
Baroness Sally Greengross – Chair, All Party Parliamentary Group on Dementia
Clare Johnson – Specialist Occupational Therapist, London Road Community Hospital, Derby
Fiona Lindop – Specialist Physiotherapist, London Road Community Hospital, Derby
Prof. John O’Brien – Foundation Professor of Old Age Psychiatry, Department of Psychiatry, University of Cambridge
Dr Jill Rasmussen – Joint Clinical Champion for Dementia, Royal College of GPs
Dr John-Paul Taylor – Wellcome Trust Intermediate Clinical Fellow, Institute for Ageing and Health and Honorary Consultant in Old Age Psychiatry, Northumberland, Tyne and Wear NHS Trust
Rachel Thompson – Dementia Project Lead, Royal College of Nursing
Dr Zuzana Walker – Reader in Psychiatry of the Elderly, University College London and St Margaret's Hospital, Epping